How's everyone doing? I've had a weird week. I got home from a quick road trip to Utah for Easter/Conference weekend last Monday night and by Tuesday afternoon something was WRONG. I'd had abdominal pain and other unpleasantness all morning and around noon I got out my old pulse oximeter and my heartbeat was 135 lying in bed with a 101.5 temperature. To the hospital I went and stayed for two nights. I've not really gotten a real answer about what happened, but I've had blood work drawn twice since Friday and things are getting back to normal. Thankfully, I have amazing friends who can and will drop everything to spend HOURS sitting in hospital rooms. Shout out to Emily, Stephanie and Alena.
For your enjoyment, I had some amazing hospital hair going.
The medical world is a frustrating place. I've been feeling like my oncologist has imaginary conversations with me, because she'll say something to me that I've never heard, but she is sure we've talked about it. Today was one of those instances. I was released from the hospital on Thursday and had a follow-up with a NP on Friday morning. The clinic called today and wanted another blood draw and my nurse met with me for the results. I asked why another appt. so soon and she said because my neutrophils had been so low - something I'd never heard in the last week. And THEN SHE TOLD ME TO START MY CHEMO AGAIN. Uh, no one ever told me to stop taking it!! SO annoying. Anyway, a day in the life.
They gave me tincture of opium (sounds cooler than it is) to control some unpleasantness in my life and it is terrible.
Here are my choices you guys - recognizing this is TMI so stop reading now you've been warned - constant diarrhea/dehydration OR the desire to lay my head on the floor 24 hours a day. Life with no stomach. WAH!
Sidenote about sugar - I ate a fun size Butterfinger in the hospital and the nurse came in a bit later to take my vitals. My heart rate had jumped from 72bpm to 105bpm because of a fun size candy bar. Sugar is terrible and makes me feel awful, but I just can't quit it.